Guinevere…

In our area of Texas, flowers start blooming in February, with wildflowers filling the fields and roadsides.

As Guinevere’s health has overall continued to decline, the last five months have been continuous doctor appointments and testing for her.

The specialists at the children’s hospital feel the chronic illness has been too much for her and brought on her current condition and at this point, it isn’t about recovery, but her learning to cope and manage her symptoms.

She is still working with doctors there and has more testing. With the genetic defects they have found, the genetic mutations, compromised immune system and the central nervous system disorders, there isn’t much they can offer, except therapies to help her cope.

We are working with other doctors also, who are hopeful. Jarrod Andrew is seeing a neurologist in Houston, the neurologist offered to see Guinevere and feels there is more to be done for her. The soonest she can get in to see him is July, then testing takes several months. So it would be fall before he does anything for her. We are praying an appointment will open sooner, according to the Lord’s will.

She has been mostly bedridden for 18 months, except for going to the hospital, appointments and IV treatments. Her physical, mental, emotional and cognitive function has all been affected. Just noise and lights are too much for her.

The days are long and the nights are longer… the appointments, treatments and testing exhaust her.

We are thankful for the Lord’s abiding care…He will make a way…whether it is in healing or continual suffering. We pray for His guidance and His direction and His daily grace for our darling.

“Abide with me; fast falls the eventide;
The darkness deepens; Lord, with me abide;
When other helpers fail and comforts flee,
Help of the helpless, oh, abide with me.

“Swift to its close ebbs out life’s little day;
Earth’s joys grow dim, its glories pass away;
Change and decay in all around I see—
O Thou who changest not, abide with me.

“I need Thy presence every passing hour;
What but Thy grace can foil the tempter’s pow’r?
Who, like Thyself, my guide and stay can be?
Through cloud and sunshine, Lord, abide with me.

“I fear no foe, with Thee at hand to bless;
Ills have no weight, and tears no bitterness;
Where is death’s sting? Where, grave, thy victory?
I triumph still, if Thou abide with me.

“Hold Thou Thy cross before my closing eyes;
Shine through the gloom and point me to the skies;
Heav’n’s morning breaks, and earth’s vain shadows flee;
In life, in death, O Lord, abide with me.”